World Intellectual Property Day: Are women in Uganda being priced out of life-saving medicine due to Intellectual Property Rights?

By: Ann Lumbasi

On this 26th day of April 2018, Uganda joins the rest of the world in commemorating World Intellectual Property day under the theme “Powering Change: Women in Innovation and Creativity” However, as we shine the light on women in innovation, the fundamental question is: are women who are the most affected group with the HIV scourge in Uganda and other developing countries benefiting from medical inventions that they so need?

Intellectual Property (IP) refers to creations of the mind, which include inventions, literary and artistic works, symbols, names, images, and designs used in trade. Intellectual Property creates rights that give entitlement to owners of IP in form of patents, copy rights and trademarks among others. These rights give the inventor the legal protection from competition so they can use or benefit from their creation exclusively for a specified period of time.

Although IP Rights are intended to promote innovation and creativity, they act as barriers for access to essential medicines as they create monopolies for pharmaceutical manufacturers who charge exorbitant prices, thereby making these medicines out of reach for many especially in least developed countries.

The sad reality is; over one quarter of the world’s population could be left at the mercy of their ailment, unable to access medicine that could change the course of their lives and this is daunting for anyone that believes in social justice. It is not surprising that IP is at the center of global debates with advocates of human rights arguing that strict enforcement of Intellectual Property Rights (IPR) affects the realization of the right to health which is recognized in international instruments and national constitutions of various countries around the world including Uganda. The International Covenant of the Economic Cultural and Social Rights (ICESCR) for instance provides that “everyone has a right to enjoyment of the highest attainable standards of physical and mental health ” defined to include access to essential medicines.

According to the health data of 2016 compiled by the Institute for Health Metrics and Evaluation , HIV was ranked number one cause for premature death in Uganda. Moreover women, in particular, are disproportionately affected in comparison to men. The health data indicates that in 2016 the HIV prevalence rates of women living with HIV was 7.6% as compared to men 4.7%. Although the first line drugs have become more affordable in the recent times, the increasing drug-resistance still presents a challenge in developing countries since patients must be moved to the second line medicines and newer formulas which are likely still protected by patents. Medicines under patent protection are evidently expensive since the inventors must make a return on the high costs of research and development.

The solution however lies in the effective utilization of provisions incorporated in the WTO- Trade Related Aspects of Intellectual Property Agreement now commonly referred to as the TRIPS flexibilities. Some key flexibilities include compulsory licensing which allows third parties to use an invention without the holders’ consent and parallel importation which allows procurement of drugs at a lower price from another country without consent of a patent holder of a patented product that is on the market of the exporting country. Another significant flexibility is the exemption of least developed countries from enforcing pharmaceutical patents until 2033 which should be exploited to promote transfer of technology.

The problem is that there little to no evidence which indicates utilization of these provisions by the developing countries including Uganda to promote access to essential medicines especially for people living with HIV, women being the majority.

As we celebrate women in innovation today, we must think of those women who are unable to access essential medicines due to a high cost implication caused by the strict enforcement of Intellectual Property Rights.

World Intellectual Property Day: Are women in Uganda being priced out of life-saving medicine due to Intellectual Property Rights?

On this 26th day of April 2018, Uganda joins the rest of the world in commemorating World Intellectual Property day under the theme “Powering Change: Women in Innovation and Creativity” However, as we shine the light on women in innovation, the fundamental question is: are women who are the most affected group with the HIV scourge in Uganda and other developing countries benefiting from medical inventions that they so need?

 

Intellectual Property (IP) refers to creations of the mind, which include inventions, literary and artistic works, symbols, names, images, and designs used in trade. Intellectual Property creates rights that give entitlement to owners of IP in form of patents, copy rights and trademarks among others. These rights give the inventor the legal protection from competition so they can use or benefit from their creation exclusively for a specified period of time.

Although IP Rights are intended to promote innovation and creativity, they act as barriers for access to essential medicines as they create monopolies for pharmaceutical manufacturers who charge exorbitant prices, thereby making these medicines out of reach for many especially in least developed countries.

The sad reality is; over one quarter of the world’s population could be left at the mercy of their ailment, unable to access medicine that could change the course of their lives and this is daunting for anyone that believes in social justice. It is not surprising that IP is at the center of global debates with advocates of human rights arguing that strict enforcement of Intellectual Property Rights (IPR) affects the realization of the right to health which is recognized in international instruments and national constitutions of various countries around the world including Uganda. The International Covenant of the Economic Cultural and Social Rights (ICESCR) for instance provides that “everyone has a right to enjoyment of the highest attainable standards of physical and mental health[1]” defined to include access to essential medicines.

According to the health data of 2016 compiled by the Institute for Health Metrics and Evaluation[2], HIV was ranked number one cause for premature death in Uganda. Moreover women, in particular, are disproportionately affected in comparison to men. The health data indicates that in 2016 the HIV prevalence rates of women living with HIV was 7.6% as compared to men 4.7%. Although the first line drugs have become more affordable in the recent times, the increasing drug-resistance still presents a challenge in developing countries since patients must be moved to the second line medicines and newer formulas which are likely still protected by patents. Medicines under patent protection are evidently expensive since the inventors must make a return on the high costs of research and development.

The solution however lies in the effective utilization of provisions incorporated in the WTO- Trade Related Aspects of Intellectual Property Agreement now commonly referred to as the TRIPS flexibilities. Some key flexibilities include compulsory licensing which allows third parties to use an invention without the holders’ consent and parallel importation which allows procurement of drugs at a lower price from another country without consent of a patent holder of a patented product that is on the market of the exporting country. Another significant flexibility is the exemption of least developed countries from enforcing pharmaceutical patents until 2033 which should be exploited to promote transfer of technology.

The problem is that there little to no evidence which indicates utilization of these provisions by the developing countries including Uganda to promote access to essential medicines especially for people living with HIV, women being the majority.

As we celebrate women in innovation today, we must think of those women who are unable to access essential medicines due to a high cost implication caused by the strict enforcement of Intellectual Property Rights.


[1]Article 12 (1) of ICESCR

[2]Available at www.healthdata.org

Advancing access to Maternal Health Services – Commemoration of the International day for maternal health and Rights

By Fatiha Nkoobe

Maternal health remains central to humanity world over since it is among the key indicators of the health of the population in all countries across the globe. It is therefore true to say that the death of mothers due to pregnancy-related causes must be a key focus of the health system of any country if good health indicators are to be realized.
Uganda has a high maternal death rate. Around 7000 women die each year, as many as 20 mothers every day due to pregnancy and birth-related complications. Access to skilled birth attendance reduces the risk of maternal death and other child-birth related complications by up to 87 per cent, according to the 2014 State of the World’s Midwifery Report.

In Uganda, access to this essential care is constrained by a human resources gap in midwifery, and retrogressive policing around sexual reproductive health. With only 73 per cent of pregnant women receiving skilled attention the country is grappling with a huge number of women who die while giving birth to 336 deaths per 100, 000 live births as put forward by the 2016 Demographic and Health Survey (UDHS) as opposed to the 70/100,000 target by WHO. This places Uganda among the top five countries in terms of maternal health deaths in sub-Saharan Africa.

On 11th April 2018, Uganda joined the rest of the world to commemorate the International Day for Maternal Health and Rights under the Theme: “Rights Based Approach to Maternal Health in Uganda: No Woman Should Die Giving Birth.”

Civil Society, led by Center for Health, Human, Rights and Development (CEHURD), and other stakeholders including policy makers marched from the Independence Monument to Parliament where a dialogue with Members of Parliament was held to collectively find sustainable solutions to the alarming maternal mortality rate. “We want to see progressive laws when it comes to maternal health and SRHR in the country because that is when we shall be able to reduce on maternal mortality,” Mr. Jjuuko Dennis – Programme Officer at CEHURD, while UWOPA chairperson Hon. Monica Amoding backed by other women legislators pointed at the weak health system as the driving force behind high maternal mortality. They however pledged to support the ministry in designing new policies to reduce the death of mothers and women.

Civil Society used dialogue to petition Parliament in demand for the implementation of the resolution that was passed by the house on December 15, 2011 urging Government to institute measures to address Maternal Mortality in Uganda. Ms. Prima Kwagala from CEHURD highlighted a number of pending resolutions that were made by Parliament yet no action has ever been taken. Among these included tasking government through the Ministry of Health to strictly enforce maternal health audits and take actions to the established causes, together with developing a policy of compensation to the families of all women who die as a result of maternal related cases through government facilities

Different stakeholders committed to raising awareness to legislators about the state of maternal health, the preventable contributors of maternal mortality and the legal and policy environment for the same to stimulate action for addressing preventable maternal mortality in Uganda.

Seclusion case Judgment

The Center for Health, Human Rights and Development (CEHURD) has today the 8th April 2018 joined other Civil Society Organisations working with People with Disabilities as well as the Uganda Medical Association to condemn a Judgment by the High Court of Uganda which declared the practice of torturing mental health patients for hours in Secluded rooms at Butabika National referral hospital a legal practice.

 

Country Programme Coordinator – Uganda

The Center for Health Human Rights and Development (CEHURD) www.cehurd.org is looking for a Country Programme Coordinator who will be contracted for a period of two (2) years beginning on 1st May, 2018 and will be stationed at CEHURD offices located at Plot 4008, Justice Road, Canaan Sites, Gayaza – Nakwero.

CEHURD with financial and technical support from the AIDS and Rights Alliance for Southern Africa (ARASA) http://www.arasa.info/, will be implementing the HIV, TB and Human Rights Training and Advocacy Programme for two (2) years, April 2018 – March 2020. The overall objective of the programme is to support the strengthening of a human rights based response to HIV and TB in an effort to ensure the creation of an enabling environment where HIV/TB related stigma and discrimination is eradicated and people living with and at higher risk of HIV have access to affordable quality health care services.

PLEASE follow this link for the Job Description and how to apply.